Feeling better

G is feeling better, probably due to the prednisone. Fever has finally broken. She is literally bouncing off the walls, actually. She is happy and full of energy, then suddenly will burst into tears. Ah, the fun side effects of systemic steriods.

Wood and I spent a long time last night researching her main symptoms. There are several credible studies about kids with recurrent pneumonia. One shows that out of 238 children with recurrent pneumonia (defined as more than 2 times- G has now had pneumonia 3x in the past 18 months), that 220 of the children had an underlying medical condition that needed treatment. The concern is that is the delay in proper diagnosis (several years for some children) causes permanent lung damage and loss of lung function that is irreversible. The tests her dr in Milwaukee ordered last week seem to be right on track, however. We're wondering, though, since she came down with strep several days after leaving Milwaukee, if that might cause irregular test results.

We have reached the point where we are actually hoping for abnormal test results -that a cause is finally identified. At least we could treat it. All this ambiguity and uncertainty is frustrating. No child should be this sick all the time. I truely fear for my daughter's health at times.