We've had a troubling holiday this year. My dad (step) had sudden and odd behavioral changes. He lives alone dowstate, and this was noticed via telephone by myself and my 2 younger sisters, as well as his neighbors over a period of several days. He is a very young 62 years old. My uncle, who lives nearby him downstate was contacted and he went to see my dad. I actually live the closest to my dad, at 8.5 hours away. One of my younger sisters is in Mobile, Alabama, and the other is in North Carolina. My older sister is in Tennessee.
He was taken to the emergency room, and has been hospitalized for the past 9 days. At first they suspected meningitis, then encephalitis. Those tests came out negative, however, he has tons of white blood cells in his spinal fluid. His behavior has become increasingly more strange. It is very hard to carry on a conversation with him, as his thoughts ramble and are all over the place and are not always rational. He has hallucinated. The hospital had to assign him a aide to be with him 24 hrs, as he would wander out of his room and get "lost", or have disruptive, hyperactive and bizarre behavior. I can't even begin to describe how hard it is to see him like this - he is completely unrecognizable from how he was only 2 weeks ago - calm, organized, reasonable and the most logical man I probably know.
On Christmas eve, he had a brain biopsy. He called me in the morning prior and told me he was getting out of the hospital. He sounded good, and fairly clear and coherant. I was so hopeful. Later that afternoon, he left a message on my voice mail. It said "spark, this is dad. They are going to do a brain biopsy. Say a prayer and light a candle. Love ya, Dad". He got out of ICU on Christmas day.
The dr's are being quite evasive about what they suspect at this point. What I "think" they suspect is a life altering disease, fatal until just a few years ago, but now treatable to a certain extent - but not to reverse any brain damage that may have already occurred. Pathology apparently doesn't work on Christmas day. We hope to have the results today.
My youngest sister drove up from Mobile with a friend and arrived on Christmas eve, so she is with him now. I'm trying to get back down there again.
A asked me "why does everyone die at the holidays? Grandpa died at Thanksgiving, now Paw Paw at Christmas - I don't want any more holidays." We have not mentioned that he is gravely ill to her, but A is and always has been moderately obsessed with death, illness and dying and she picks up on everything we say.
Praying for some hopeful news today about the biopsy.
Friday, December 26, 2008
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